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Blogging Without A Picture Perfect Life
There’s so much pressure online to have a picture perfect life and to have every moment Instagramable, that it can be very daunting to think of starting or maintaining a blog. Do you need to have everything put together and looking immaculate in order to share your story online? I’m here to remind myself and others that the answer is “no.” Here are my tips for blogging without a picture perfect life, and how I’m letting go of perfectionism as a chronic illness writer.
I am a perfectionist, or at least someone who’s trying to be less of a perfectionist. My preference would be to wait to share my writing or photography or crafting until I’ve gotten it polished and as close to perfect as possible. But I live with multiple chronic illnesses that greatly limit my energy and ability to accomplish even routine tasks, so even publishing one post on my blog is a challenge. -
The Helpful Chart My Doctor Recommended I Create
Do you ever discover a useful resource for your health that just makes you want to share it? That’s the way I felt when my doctor recommended I create this chart. This is a helpful way to prepare for a doctor’s visit. It led to a lot of light bulb moments as I considered the future direction of my treatment plan, especially when it comes to medication and supplements.
This chart will help you streamline appointments by having more information at your fingertips, whether you’re meeting with your doctor in person or doing televisits. (I’ve actually found televisits practical because I use up less energy and can pull up documents about my health history on my computer…or ask my mom to run into the next room to check the dosage on my supplements, LOL! What do you guys think of them?)
I feel I’ve hit a dead end with my health and haven’t been seeing improvement (so I’ve been trying to focus on the little things I can do).
That’s why I recently saw my naturopathic oncologist to get a new perspective. I hadn’t seen him in awhile—I had thyroid cancer three years ago and have other chronic health conditions including dysautonomia, fibromyalgia, an autoimmune disease, and asthma.
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Q&A with Olivia Wolfertz: “I would encourage someone going through a chronic illness to see themselves as valuable and brave even despite their limits.”
Olivia Wolfertz runs the blog Unpolished Ponderings, where she shares her love of Jesus and creativity, plus a hopeful outlook on life with chronic illness. I feel so blessed that this Invisible Illness, Visible Worth interview project continues to let me connect with kindred spirits who love stories, creating, and writing!
Olivia created her blogging platform a few years ago as a way to document and cope with her illnesses, including Lyme disease. It’s grown into an outlet where she loves to share what she’s been making lately and what’s encouraging her.
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The Story Behind My New Blog Name: Starlight through the Storm
Ta-da! You may have noticed that my blog has a new logo as well as a new name! I thought I’d share a behind-the-scenes look at the inspiration behind both. I hope this will give you more insight into what you’ll find on my blog, as well as help you know a little more about the person who runs it.
I’ve literally been trying to pick a name before I even started blogging—over two years ago! (Yep, my blog had its anniversary in March and I kinda let it slip by. Oops!) I’m sure glad I didn’t wait until I had the “perfect” name picked before I started my blogging journey. (I think you should dive into blogging even if you don’t feel 100% ready.)
From poems to PR pieces, the titles have always been a challenge for me. So I’ve been brainstorming (for, ahem, years)…how to choose a blog name that sums up living with chronic illness, and not just surviving but thriving? I wanted to choose a name that sounded specific enough but was also broad enough that it would allow me to talk about all the things that bring me joy when my health turns life upside down—such as my faith, my love of words (and books!) and creativity.
Here’s the story behind coming up with a name for this blog, and why it’s special to me.
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Things I’m Doing For My Health Right Now
I’m a huge advocate of being proactive when it comes to your health, so I today I’m sharing some of the ways I’m doing this right now.
Lately, I’ve had the feeling that no matter what I do for my health, it feels kind of futile. That’s one of the sucky things about being chronically ill—you can do all the right things, and still be, well, chronically ill. Plus, I’ve been dealing with the cold weather (one of my triggers), health set backs, and—oh joy—new symptoms. It’s frustrating and ironic when your health is one of the things keeping you from being proactive about your health.
Thus, this blog post. I thought it would be helpful to record the ways I can be proactive about my health, and how these actions do help, even if just in a small way.
Some of the items on my list may look a little random, or not the kind of things you would associate with “health.” Most of these things aren’t specific to helping any one health condition, like my dysautonomia, fibromyalgia, asthma, autoimmune disease, ME/CFS, etc. But I’ve been trying to pay attention to what is zapping my energy or causing me stress. Viewing a problem as an opportunity to improve my health helps in two ways: 1) this helps me clarify a goal (less energy output or stress) and 2) this helps motivate me to make positive changes (by reminding me that this is important to my overall wellbeing). This clarity and motivation is enough to break through my brain fog and exhaustion so that I’m able to work on my health.
My hope is that this post will help you take a look at what you’re doing for your own wellness, or inspire you to think of new ways you can include more self care in your life. And when you make that list, I hope your reaction is similar to mine: I might be limited in what I can do for my health right now, but I’m doing the best I can.
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Things I Wish I Knew Before I Started Blogging And Why You Should Blog Before You’re “Ready”
As promised in my round up about my first year blogging, I’m sharing tips I wish I had known from the beginning of my blogging journey. Be assured, this post isn’t to dissuade you from starting your blog. In fact, I think you should start a blog before you’re “ready,” and I’ll explain why.
On my Facebook page, I asked if anyone had questions about my first year blogging. One of the questions was: “What was your reason for starting a blog?” Answering this question is the perfect background for why I think you should start blogging before you’re totally sure what you’re doing.
One of the topics I blog about is dealing with chronic illnesses. I have several, and they’ve become progressively worse the last several years. The first one to get diagnosed was thyroid cancer. These illnesses have threatened to squash my dreams of being a published author. I think the first time I said I wanted to write books, I was in kindergarten (and then I promptly wrote a book for a friend and a play that my friend and I acted out while my dad taped us on the camcorder.) It’s been one of my dreams ever since.
Despite becoming more sick, I was (and am) determined to keep writing. As you might have guessed, it’s kind of hard to finish writing a book when you struggle just to function during the day! And while I’ve published a handful of poems, I’ve not yet gotten a book out into the world. I started to feel frustrated. Even when I pushed myself to write, my words just stayed stuck on my computer. I felt like I wasn’t accomplishing anything. No one was reading a single word I wrote, unless it was a kind friend or family member offering to look over a story.
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My Criteria For Comfortable Clothes & What I’m Loving Right Now
Finding comfortable clothes can be a major challenge, especially when you have a chronic illness (or two, or three…).
I have fibromyalgia, Raynaud’s and asthma, among other things, which all contribute to my needing clothes that don’t cause any of my health conditions to flare up.
And, as I talked about in this post, it helps me to when I wear clothes that look fashionable because looking presentable makes me feel better. As Gretchen Rubin has talked about in her podcast, wearing clothes that look like clothes (vs. pjs) improves your mood.
Some of the links in this post are affiliate links, which means I receive a small portion of sales, at no additional cost to you, if you click through and make a purchase.
Here are some of the things I look for in clothes:
Soft/breathable fabric—a must for comfort, as well as to help with my issues with temperature regulation. I’m usually freezing. I aim to buy mostly cotton clothing, but it’s surprising how hard that is to find anymore.
Not too tight or restrictive—I already have pressure points and difficulty breathing—the last thing I need is for my clothes to make this worse! A good, flattering fit helps me to look and feel my best.
Makes me feel my best—for me, this means non-pj shirts. To be honest, I usually wear pajama pants around the house because they don’t hurt my hips, so if I’m wearing a “normal” top, I still feel like I’m “dressed” and ready for the day. (If you’re most comfortable in pjs due to pain/illness/etc., the last thing I want to do is make you feel badly about it! Taking care of yourself with your wardrobe is the most important thing.)
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Superpowers You Gain From Chronic Illness and Chronic Pain
Just for fun, I thought I’d write a post about all the “superpowers” we (unintentionally) gain when we develop chronic health conditions.
My massage therapist and I joke that I fight crime in my sleep. It’s a much more fun explanation for why my muscles freak out (the real reason: fibromyalgia). We joke that this is why I have brain fog too—I’m so deep undercover that *I* don’t even know that I’m a secret super hero, so I must be getting my memory wiped every morning. Sounds legit.
This got me thinking that, hey, those of us in the spoonie community really do have our own set of superpowers. And no radioactive spiders are even required! (Thankfully, because I hate spiders…and as for radioactive—been there, done that!)
I hope you enjoy these tongue-in-cheek examples of our superpowers. Because in all seriousness, each of you are fighters to get through each day with chronic illness and chronic pain.
