-
Interesting Around the Web – August 2019
Hello readers, I have rounded up some interesting articles and posts from around the web!
I’ve been taking it easy after a trip to a museum totally wiped me out for a week, so it’s been fun to discover interesting reads online to keep me occupied. I also got to contribute a quote to another blogger about how important to advocate for yourself when doctors are dismissive or misdiagnose you (one time a doctor told me I didn’t have asthma… when I clearly do and have since birth!) I was also delighted to discover that another blogger read my latest My List of Little Joys posts and was inspired to write a post of her own on that theme.
I hope you all enjoy these links and have a wonderful Labor Day weekend!
-
How to Benefit from Organizing When You Have No Energy
Sometimes I just want to go on an organizing or cleaning spree. I’m one of those people who gets an inordinate amount of satisfaction from tidying things up and putting things in order. I love the feeling of looking around and seeing everything tucked away where it belongs—it’s like a puzzle piece clicking into place. An organized space helps me to feel accomplished, refreshed, and peaceful. When I need to de-stress, organizing is actually very relaxing.
I would very much love to benefit from organizing, but my energy level simply says “no.” My chronic health conditions mean I burn out super easily—something as mundane as taking a shower or sitting at my computer for 20 minutes can make me feel as if I ran a marathon.
I was super bummed to think I’ve lost a major way to de-stress that I depended on. Now more than ever, I could use some tried and true ways to decompress!
So instead of throwing out organizing, I’m rethinking it. How can I still benefit from tidying even though my energy is nonexistent? I’ve thought of some ideas to share with you.
-
Interesting Around the Web – May 2019
I’m going to try a new post style and gather together some of the links that have caught my attention recently. Here’s what I’ve discovered while browsing blogs and articles.
May is #MEawareness month, so in honor of raising awareness for Myalgic Encephalomyelitis (also called Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or abbreviated ME/CFS) my links for this month are focused on this illness, as well as tips for living well with debilitating fatigue. This is one of my chronic health conditions, and hopefully raising awareness will lead to further research, understanding, and—eventually—an affective way to treat this condition.
10 Low activity creative hobbies forspoonies
(A Journey Through the Fog)
“Creative hobbies do not have to be difficult. Many of us lack the confidence to start, but something as simple as colouring is a great, therapeutic and low energy way to express our creativity.”
11 Benefits of Living with Chronic Illness & Autoimmune Disease
(Healthy Habits Reset)
“If you’ve ever experienced chronic fatigue, you know that there are no words (at least in the English language) that could possibly encompass all that is: chronic fatigue.”
-
Things I Wish I Knew Before I Started Blogging And Why You Should Blog Before You’re “Ready”
As promised in my round up about my first year blogging, I’m sharing tips I wish I had known from the beginning of my blogging journey. Be assured, this post isn’t to dissuade you from starting your blog. In fact, I think you should start a blog before you’re “ready,” and I’ll explain why.
On my Facebook page, I asked if anyone had questions about my first year blogging. One of the questions was: “What was your reason for starting a blog?” Answering this question is the perfect background for why I think you should start blogging before you’re totally sure what you’re doing.
One of the topics I blog about is dealing with chronic illnesses. I have several, and they’ve become progressively worse the last several years. The first one to get diagnosed was thyroid cancer. These illnesses have threatened to squash my dreams of being a published author. I think the first time I said I wanted to write books, I was in kindergarten (and then I promptly wrote a book for a friend and a play that my friend and I acted out while my dad taped us on the camcorder.) It’s been one of my dreams ever since.
Despite becoming more sick, I was (and am) determined to keep writing. As you might have guessed, it’s kind of hard to finish writing a book when you struggle just to function during the day! And while I’ve published a handful of poems, I’ve not yet gotten a book out into the world. I started to feel frustrated. Even when I pushed myself to write, my words just stayed stuck on my computer. I felt like I wasn’t accomplishing anything. No one was reading a single word I wrote, unless it was a kind friend or family member offering to look over a story.
-
My Criteria For Comfortable Clothes & What I’m Loving Right Now
Finding comfortable clothes can be a major challenge, especially when you have a chronic illness (or two, or three…).
I have fibromyalgia, Raynaud’s and asthma, among other things, which all contribute to my needing clothes that don’t cause any of my health conditions to flare up.
And, as I talked about in this post, it helps me to when I wear clothes that look fashionable because looking presentable makes me feel better. As Gretchen Rubin has talked about in her podcast, wearing clothes that look like clothes (vs. pjs) improves your mood.
Some of the links in this post are affiliate links, which means I receive a small portion of sales, at no additional cost to you, if you click through and make a purchase.
Here are some of the things I look for in clothes:
Soft/breathable fabric—a must for comfort, as well as to help with my issues with temperature regulation. I’m usually freezing. I aim to buy mostly cotton clothing, but it’s surprising how hard that is to find anymore.
Not too tight or restrictive—I already have pressure points and difficulty breathing—the last thing I need is for my clothes to make this worse! A good, flattering fit helps me to look and feel my best.
Makes me feel my best—for me, this means non-pj shirts. To be honest, I usually wear pajama pants around the house because they don’t hurt my hips, so if I’m wearing a “normal” top, I still feel like I’m “dressed” and ready for the day. (If you’re most comfortable in pjs due to pain/illness/etc., the last thing I want to do is make you feel badly about it! Taking care of yourself with your wardrobe is the most important thing.)
-
Superpowers You Gain From Chronic Illness and Chronic Pain
Just for fun, I thought I’d write a post about all the “superpowers” we (unintentionally) gain when we develop chronic health conditions.
My massage therapist and I joke that I fight crime in my sleep. It’s a much more fun explanation for why my muscles freak out (the real reason: fibromyalgia). We joke that this is why I have brain fog too—I’m so deep undercover that *I* don’t even know that I’m a secret super hero, so I must be getting my memory wiped every morning. Sounds legit.
This got me thinking that, hey, those of us in the spoonie community really do have our own set of superpowers. And no radioactive spiders are even required! (Thankfully, because I hate spiders…and as for radioactive—been there, done that!)
I hope you enjoy these tongue-in-cheek examples of our superpowers. Because in all seriousness, each of you are fighters to get through each day with chronic illness and chronic pain.
-
My List of Little Joys
I want to try a new style of blog post, and would love to hear what you guys think of it!
I’ve been wanting to get back into gratitude journaling after an unintentional break, as well as just journaling in general. I used to write journal entries fairly regularly, but lately its been…every four months or so.
I noticed a funny trend when I’ve been writing in my gratitude journal lately—I’ve wanted to write something down that made me happy, but it made me feel silly to say I was GRATEFUL for it. So I thought I’d combine gratitude journaling with capturing moments that brought me joy.
-
Brain Fog Broke My Internal Editor
Fibromyalgia has impacted my ability as a writer, and I’m just starting to understand all the ways it has. I’ve been trying to express it for awhile, with the irony being that it takes way more effort now for me to express anything. Brain fog has made it extremely hard for me to objectively edit my work. It’s like the editing part of my brain is broken.
Blogging has been much harder than I thought it would be, for reasons I didn’t expect. I knew energy to write was going to be a challenge, in addition to fighting through brain fog to express myself. But I wasn’t expecting to have so much trouble evaluating the quality of my work.
I was given a great piece of advice
