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My Experience Fundraising for Medical Expenses
Today I want to share about an organization that can help chronic illness patients fundraise for medical expenses. Chronic illness is expensive, and I am so thankful to have recently found out about Help Hope Live, which can help with co-pays, prescriptions costs, insurance premiums, and more.
In this post, I’ll share about my experience fundraising with this organization, so you can see if it would be a good fit to help you or a loved one living with chronic health conditions or a serious injury.
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How to Find Financial Assistance for Chronic Illness Expenses
Did you know that patients with chronic illness can apply for grants to help with medical expenses? Me neither! I’m going to share about several organizations that provide medical grants and financial assistance.
I can’t believe I’ve been seriously ill for over six years and am just now hearing something like this exists! I thought medical grants were something only doctors or researchers could apply for.
These programs may be able to help with costs like copays, insurance premiums, prescription costs, and more.
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Interesting Around the Web – August 2019
Hello readers, I have rounded up some interesting articles and posts from around the web!
I’ve been taking it easy after a trip to a museum totally wiped me out for a week, so it’s been fun to discover interesting reads online to keep me occupied. I also got to contribute a quote to another blogger about how important to advocate for yourself when doctors are dismissive or misdiagnose you (one time a doctor told me I didn’t have asthma… when I clearly do and have since birth!) I was also delighted to discover that another blogger read my latest My List of Little Joys posts and was inspired to write a post of her own on that theme.
I hope you all enjoy these links and have a wonderful Labor Day weekend!
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Activities for Summer Fun #2—Low Cost, Low Energy + A Free Printable
Summer is my favorite time of year! Now that summer is officially here, I want to make the most of it by making some plans. So I’m sharing a list of fun activities with you all.
Last year, I blogged about ideas for summer fun that are easier for those of us with health issues (and included a free printable you can download), and this year I’m expanding on that list.
While most summery lists are geared toward people who are healthy, my list is achievable for people who deal with chronic illness and chronic fatigue. I’ve put together ideas that are adaptable for a variety of energy levels. I hope you’ll use this list as a jumping off point to craft a beautiful summer full of sun, novelty, creativity, and friends and family.
Find out how to get this list as a free printable at the end of this post. I enjoyed checking off items on last year’s list and seeing just how much I was able to accomplish!
Also, these ideas are mostly free or inexpensive, making them perfect for anyone who wants to save money. These would make great experiences for families with kids home for the summer too.
For some with chronic illness, summer can mean symptoms ease up a little, but for others the heat can actually exacerbate illness. You’ll notice that most of these ideas would be something you could do year round. If summer is rough on you, tuck this list away for another time of year when you have more energy.
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How to Benefit from Organizing When You Have No Energy
Sometimes I just want to go on an organizing or cleaning spree. I’m one of those people who gets an inordinate amount of satisfaction from tidying things up and putting things in order. I love the feeling of looking around and seeing everything tucked away where it belongs—it’s like a puzzle piece clicking into place. An organized space helps me to feel accomplished, refreshed, and peaceful. When I need to de-stress, organizing is actually very relaxing.
I would very much love to benefit from organizing, but my energy level simply says “no.” My chronic health conditions mean I burn out super easily—something as mundane as taking a shower or sitting at my computer for 20 minutes can make me feel as if I ran a marathon.
I was super bummed to think I’ve lost a major way to de-stress that I depended on. Now more than ever, I could use some tried and true ways to decompress!
So instead of throwing out organizing, I’m rethinking it. How can I still benefit from tidying even though my energy is nonexistent? I’ve thought of some ideas to share with you.
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Interesting Around the Web – May 2019
I’m going to try a new post style and gather together some of the links that have caught my attention recently. Here’s what I’ve discovered while browsing blogs and articles.
May is #MEawareness month, so in honor of raising awareness for Myalgic Encephalomyelitis (also called Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or abbreviated ME/CFS) my links for this month are focused on this illness, as well as tips for living well with debilitating fatigue. This is one of my chronic health conditions, and hopefully raising awareness will lead to further research, understanding, and—eventually—an affective way to treat this condition.
10 Low activity creative hobbies forspoonies
(A Journey Through the Fog)
“Creative hobbies do not have to be difficult. Many of us lack the confidence to start, but something as simple as colouring is a great, therapeutic and low energy way to express our creativity.”
11 Benefits of Living with Chronic Illness & Autoimmune Disease
(Healthy Habits Reset)
“If you’ve ever experienced chronic fatigue, you know that there are no words (at least in the English language) that could possibly encompass all that is: chronic fatigue.”
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Why I’m Taking A Mini Blogging Break
Hello readers! I wanted to let you know that I’m going to take the next two-three weeks away from my blog.
I have upcoming ideas I’m excited to share with you, but first, I need to have a little down time.
I realized this is a needed break for my health. My body is having trouble adjusting to the fact that I had to stop a treatment that my doctor no longer provides, so I need to look into some other ways to support my pain and fatigue. Also, I’m hoping to start a detox, which my doctors have warned me will likely increase my exhaustion, so I want to give myself some space to get through that. I’m really hopeful I’ll see a benefit from this treatment.
Also, I’ve found that blogging has taken up all the time I have for creative pursuits, so I want to take some time to switch things up and pursue some things I haven’t had the time for. (And I’ll share about those fun things with you all!)
I look forward to catching up with you all soon!
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Things I Wish I Knew Before I Started Blogging And Why You Should Blog Before You’re “Ready”
As promised in my round up about my first year blogging, I’m sharing tips I wish I had known from the beginning of my blogging journey. Be assured, this post isn’t to dissuade you from starting your blog. In fact, I think you should start a blog before you’re “ready,” and I’ll explain why.
On my Facebook page, I asked if anyone had questions about my first year blogging. One of the questions was: “What was your reason for starting a blog?” Answering this question is the perfect background for why I think you should start blogging before you’re totally sure what you’re doing.
One of the topics I blog about is dealing with chronic illnesses. I have several, and they’ve become progressively worse the last several years. The first one to get diagnosed was thyroid cancer. These illnesses have threatened to squash my dreams of being a published author. I think the first time I said I wanted to write books, I was in kindergarten (and then I promptly wrote a book for a friend and a play that my friend and I acted out while my dad taped us on the camcorder.) It’s been one of my dreams ever since.
Despite becoming more sick, I was (and am) determined to keep writing. As you might have guessed, it’s kind of hard to finish writing a book when you struggle just to function during the day! And while I’ve published a handful of poems, I’ve not yet gotten a book out into the world. I started to feel frustrated. Even when I pushed myself to write, my words just stayed stuck on my computer. I felt like I wasn’t accomplishing anything. No one was reading a single word I wrote, unless it was a kind friend or family member offering to look over a story.
