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The Helpful Chart My Doctor Recommended I Create
Do you ever discover a useful resource for your health that just makes you want to share it? That’s the way I felt when my doctor recommended I create this chart. This is a helpful way to prepare for a doctor’s visit. It led to a lot of light bulb moments as I considered the future direction of my treatment plan, especially when it comes to medication and supplements.
This chart will help you streamline appointments by having more information at your fingertips, whether you’re meeting with your doctor in person or doing televisits. (I’ve actually found televisits practical because I use up less energy and can pull up documents about my health history on my computer…or ask my mom to run into the next room to check the dosage on my supplements, LOL! What do you guys think of them?)
I feel I’ve hit a dead end with my health and haven’t been seeing improvement (so I’ve been trying to focus on the little things I can do).
That’s why I recently saw my naturopathic oncologist to get a new perspective. I hadn’t seen him in awhile—I had thyroid cancer three years ago and have other chronic health conditions including dysautonomia, fibromyalgia, an autoimmune disease, and asthma.
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Q&A with Olivia Wolfertz: “I would encourage someone going through a chronic illness to see themselves as valuable and brave even despite their limits.”
Olivia Wolfertz runs the blog Unpolished Ponderings, where she shares her love of Jesus and creativity, plus a hopeful outlook on life with chronic illness. I feel so blessed that this Invisible Illness, Visible Worth interview project continues to let me connect with kindred spirits who love stories, creating, and writing!
Olivia created her blogging platform a few years ago as a way to document and cope with her illnesses, including Lyme disease. It’s grown into an outlet where she loves to share what she’s been making lately and what’s encouraging her.
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Q&A with Beth Madison: “You are more than your disease. You can be defined by your disease or you can be defined by trusting God with your disease.”
Beth Madison teaches biology at Union University and is a patient advocate through Global Healthy Living Foundation. Over the last eight years, her health journey has included rheumatoid arthritis and lupus, as well as other chronic illness.
I love the story Beth shares in this interview about friends who are wonderful examples of what it looks like to faithfully support someone with invisible illness, as well as her examples of how God proves Himself trustworthy over and over again.
I hope you’re encouraged by this conversation with Beth on chronic illness, faith, and perseverance.
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Ups And Downs: Summer, Chronic Illness, and a New Normal
Hello friends, I’m so excited to be able to join A Chronic Voice’s link up this month. Summer is finally here, but unfortunately, that doesn’t mean a vacation from chronic illness. So I’m going to share what I’ve found helpful and how I’m coping with the new normal.
This link up is a way for chronic illness bloggers to connect by writing posts based on the same prompts. I found it so helpful last month to use the prompts as a jumping off point to not only write a blog post, but also to do some journaling for myself to process everything going on in the world and my own life.
This month, I’m using the prompts to share a little bit about what I’ve been up to lately creatively, what I’ve been struggling with healthwise, and how I’m continuing to adjust to the new normal.
The prompts for this month are Bothering, Demanding, Telecommunicating, Tolerating, and Nourishing.
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Q&A with author Daphne Self: “Never give up. There is always someone out there that understands.”
Daphne Self is an author whose books include fiction, a devotional, and soon, a book about living well with chronic illness. In this interview, Daphne shares how she uses her love of writing to encourage others and point them to Jesus, all while dealing with one of the worst cases of fibromyalgia pain her doctor has seen.
Daphne’s fourth book was just released this June. You can check out Alabama Days, the second book in a series, here. The book follows a paramedic, who has seen too much suffering to believe God can be good, and a reporter who both get caught up investigating a series of suspicious accidents.
Her nonfiction book on chronic illness will be available this fall—it will chronicle the ups and downs she went through when she was first diagnosed with fibromyalgia and chronic pain.
I hope you’re encouraged by this conversation with Daphne on chronic illness, faith, and perseverance.
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Mid-Year Reflections In A Year Of Pandemic: June Linkup
I can’t believe it’s been over a year since I joined A Chronic Voice’s linkup for the first time! I’ve been meaning to join this way for chronic illness bloggers to connect since, but life intervened (aka symptoms have severely limited my writing time). This month, I was thrilled that not only did I have the mental bandwidth to participate, but also that the prompts aligned with several things bouncing around in my head. Chronic illness in a pandemic presents its own unique challenges. (PS here’s my last linkup post.)
I hope you all are doing as well as you can be. Those of you who love the sunshine, I hope that you are also enjoying the warmer days. I love that the weather will be warmer (in upper 60s or 70s) for about three days, and then rainy for two days—this gives me a good dose of vitamin D when I can sit and walk a little outside.
The rain gives me a break from feeling like I *have* to get outside; we call that pressure to soak up as much warmth as we can “sun guilt” in the Pacific Northwest. The cottonwood trees had the air filled with tufts of white that looked like slow-drifting snow up until recently. Everything is blooming early, including my beauty bush, which is covered in bees and hummingbirds. (Ok, I’ve seen THREE hummers at once, so not exactly “covered!”)
In the world beyond my yard, things are moving ahead as Washington counties move into Phase 2 of coming out of quarantine/social distancing. (My county was added to the list June 5.) High risk populations are to “Stay Home, Stay Healthy” through Phase 3. I’ll talk more about this below.
Let’s dive in. The themes for this month are Searching, Hoping, Honoring, Traumatizing, and Responding.
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Q&A with blogger Hailey Hudson: “Suffering and joy really can and do coexist.”
I love that the Internet provides us with so many opportunities to connect with and be encouraged by fellow writers, and I’m excited to introduce you to Hailey Hudson, whose interests include blogging, freelancing, and fiction writing. She lives with health conditions including POTS (postural orthostatic tachycardia syndrome), carpal tunnel, and undiagnosed conditions causing chronic fatigue, seizures, and GI issues. (Raising awareness about POTS is of personal importance to me, as I also have a form of dysautonomia, an umbrella term for neurological conditions like POTS.)
Hailey is a full-time freelance writer and content marketer who runs the blog The Hardworking Creative. You can also find her on her personal blog, Now All I Know is Grace. I love that she shares monthly wrap-ups highlighting what she’s reading, listening to, watching, grateful for, and more
Earlier this year, Hailey spoke at the 2020 Diamonds Conference, which is an online conference for chronically ill Christians. (I didn’t get to go this year, but it’s something I learned about recently and hope to attend in the future. More info about it below!)
I hope you’re encouraged by this conversation with Hailey on chronic illness, faith, and perseverance.
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The Story Behind My New Blog Name: Starlight through the Storm
Ta-da! You may have noticed that my blog has a new logo as well as a new name! I thought I’d share a behind-the-scenes look at the inspiration behind both. I hope this will give you more insight into what you’ll find on my blog, as well as help you know a little more about the person who runs it.
I’ve literally been trying to pick a name before I even started blogging—over two years ago! (Yep, my blog had its anniversary in March and I kinda let it slip by. Oops!) I’m sure glad I didn’t wait until I had the “perfect” name picked before I started my blogging journey. (I think you should dive into blogging even if you don’t feel 100% ready.)
From poems to PR pieces, the titles have always been a challenge for me. So I’ve been brainstorming (for, ahem, years)…how to choose a blog name that sums up living with chronic illness, and not just surviving but thriving? I wanted to choose a name that sounded specific enough but was also broad enough that it would allow me to talk about all the things that bring me joy when my health turns life upside down—such as my faith, my love of words (and books!) and creativity.
Here’s the story behind coming up with a name for this blog, and why it’s special to me.
