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The Story Behind My New Blog Name: Starlight through the Storm
Ta-da! You may have noticed that my blog has a new logo as well as a new name! I thought I’d share a behind-the-scenes look at the inspiration behind both. I hope this will give you more insight into what you’ll find on my blog, as well as help you know a little more about the person who runs it.
I’ve literally been trying to pick a name before I even started blogging—over two years ago! (Yep, my blog had its anniversary in March and I kinda let it slip by. Oops!) I’m sure glad I didn’t wait until I had the “perfect” name picked before I started my blogging journey. (I think you should dive into blogging even if you don’t feel 100% ready.)
From poems to PR pieces, the titles have always been a challenge for me. So I’ve been brainstorming (for, ahem, years)…how to choose a blog name that sums up living with chronic illness, and not just surviving but thriving? I wanted to choose a name that sounded specific enough but was also broad enough that it would allow me to talk about all the things that bring me joy when my health turns life upside down—such as my faith, my love of words (and books!) and creativity.
Here’s the story behind coming up with a name for this blog, and why it’s special to me.
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How “Choosing” Helps on Bad Days + Free Printables
“Today I choose to”—these are powerful words to reframe thinking. I’ve started reminding myself that “I have a choice” to help me get through bad chronic illness days, and today I’m sharing my tips for “choosing” when we feel stuck. Plus, I’ve created three free printables to help you choose what you want to focus on, whether you feel stuck because of chronic illness, being at home because of social distancing during quarantine, or whatever challenges you might be facing.
I’ve found that I can tolerate most things if I feel like I have a choice. In other words, when I reframe my thinking and choose how to respond, I feel more in control and able to cope with a situation, even if that situation is far from ideal.
What got me thinking about this? Not too long ago I was lying in my recliner, where I spend a lot of my time due to dysautonomia, fibromyalgia, ME/CFS (myalgic encephalitis/chronic fatigue syndrome), and other chronic conditions. And I was frustrated because I did not want to be there, just watching TV. My mind was buzzing with all of the things I wished I could be doing. I didn’t want to rest, I wanted to do things!
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Empty Calendar While Stuck At Home? Record The Good Things!
A lot of us are stuck at home or stuck inside right now, and if you’re like me, facing an empty calendar might make you feel blue. I originally envisioned this post for people who spend most of their time at home due to chronic illness, and I hope this topic will be helpful to even more people while we’re experiencing social distancing and self-quarantine.
While staying at home a lot over the last three years due to my health, I’ve found it helpful to look at my blank calendar as an opportunity—it’s the perfect place to record the good things. After all, we don’t have to be busy to be joyful.
This post will help you brainstorm ways your calendar can help you look forward to the future with a sense of anticipation, and look back on memories with a sense of joy and gratitude.
I know not everyone keeps a physical calendar, but if you keep a calendar on your phone or computer, you can use these tips too. Families can use these tips when using the calendar to keep a schedule and sense of normalcy for kids. You could also use this post as a prompt for bullet journaling if that’s the way you prefer to capture what you’ve been up to lately.
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How To Stay Connected From A Distance
This post is all about finding creative ways to stay connected while we’re apart. I’ve been planning to write this post for awhile, and because of quarantine and social distancing, now seems more perfect than ever.
I’m sure everyone is aware that these are very unusual times everywhere. In case you’re interested in what’s going on in my corner of the world: I’ve been home since March 5 at my doctor’s advice to protect myself from COVID-19. On March 16, Americans were asked to stay home as much as possible to flatten the curve (all schools in Washington were officially closed that day as well), and March 23 the Washington state governor issued a stay-at-home order.
To everyone who is taking this seriously and protecting those of us with weakened immune systems: THANK YOU. We can do this, and I have some tips.
If there is one good thing in the midst of all this, it’s that people are realizing how challenging it can be to stay connected when you can’t leave your home. As I shared in a Facebook post, oddly enough, I’ve been able to be more social recently because people are free to talk to on the phone and join video calls.
Chronic illness is super isolating, and the chronic illness community has a lot of advice for everyone experiencing this challenge. (For more on what this looks like in day to day life for people with chronic illness, I recommend this article from The Mighty.)
This post is for everyone experiencing this temporary change due to quarantine and social distancing, as well as though of us who are chronically ill and have had to adapt long-term.
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Things I’m Doing For My Health Right Now
I’m a huge advocate of being proactive when it comes to your health, so I today I’m sharing some of the ways I’m doing this right now.
Lately, I’ve had the feeling that no matter what I do for my health, it feels kind of futile. That’s one of the sucky things about being chronically ill—you can do all the right things, and still be, well, chronically ill. Plus, I’ve been dealing with the cold weather (one of my triggers), health set backs, and—oh joy—new symptoms. It’s frustrating and ironic when your health is one of the things keeping you from being proactive about your health.
Thus, this blog post. I thought it would be helpful to record the ways I can be proactive about my health, and how these actions do help, even if just in a small way.
Some of the items on my list may look a little random, or not the kind of things you would associate with “health.” Most of these things aren’t specific to helping any one health condition, like my dysautonomia, fibromyalgia, asthma, autoimmune disease, ME/CFS, etc. But I’ve been trying to pay attention to what is zapping my energy or causing me stress. Viewing a problem as an opportunity to improve my health helps in two ways: 1) this helps me clarify a goal (less energy output or stress) and 2) this helps motivate me to make positive changes (by reminding me that this is important to my overall wellbeing). This clarity and motivation is enough to break through my brain fog and exhaustion so that I’m able to work on my health.
My hope is that this post will help you take a look at what you’re doing for your own wellness, or inspire you to think of new ways you can include more self care in your life. And when you make that list, I hope your reaction is similar to mine: I might be limited in what I can do for my health right now, but I’m doing the best I can.
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A Dairy-Free, Gluten-Free Starter Kit: My Go-To Shopping List for Food Allergies
I remember sitting in the doctor’s office and hearing I had to give up dairy. He had a strong suspicion it was aggravating my asthma. (He was right.) I didn’t know where to start when I found out I had food allergies.
My brain was going through the list I had kept for the last week, tracking everything I ate. There was milk, or butter, egg, or cheese in everything. What on earth was I going to eat? Carrots? I already had several food allergies to deal with, so this was going to be a challenge. I faced a similar challenge when my allergy tests suddenly showed a new allergy to gluten a couple years ago.
At the time, I wished I had a friend to walk with me through the grocery store to help me find food that I could eat. I’m going to be that friend for you! While I can’t actually shop with you, I’ve created this list to give you a place to start.
Finding out you have food allergies can be very daunting. It’s hard to know where to start when you’re trying an elimination diet or cutting out whole food groups. It felt like a huge potential waste of money to pile items into my cart, wondering if I would even like any of them. And, unfortunately gluten-free and dairy-free foods have a bad rap for being tasteless or gross.
Although I’ve tried some weird things over the years, the good news is that there are many, many allergy-free options that are delicious! This list is made up of the options I love best, so I can save you some of that trial and error.
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Q&A with Jenna Ziegler “I thought I was letting go of my dream job. Turns out, this decision led me to this new career that brings me joy I didn’t know possible.”
A few years ago, I was planning to start a writers’ group, but due to my health changing unexpectedly, I was never able to get one up and running. So I was pleasantly surprised when blogging made that happen in a way I didn’t expect. Blogging allows me to connect with other writers, and I get especially excited when those writers love the creative side of writing, like fiction and poetry. That’s one of the reasons I’m thrilled to be able to introduce you to Jenna Ziegler, a chronic illness blogger and aspiring novelist.
Jenna runs the blog The Comical Colon, where she shares her medical journey in a comical light to encourage others to share their unique health journeys. When I found her blog, I immediately sent a link to a friend who was recently diagnosed with colitis because I knew she could benefit from Jenna’s informative and upbeat writing.
When chronic illness threatened her opportunities to have the schooling and career she desired, Jenna found that her health also brought new options for pursuing her love of writing. She’s been blogging since March 2018 and she’s also an aspiring author. Jenna shares about her writing journey (including participating in NaNoWriMo) plus numerous helpful chronic illness resources in this interview.
I hope you’re encouraged by this conversation with Jenna on chronic illness, faith, and perseverance.
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Interesting Around the Web – August 2019
Hello readers, I have rounded up some interesting articles and posts from around the web!
I’ve been taking it easy after a trip to a museum totally wiped me out for a week, so it’s been fun to discover interesting reads online to keep me occupied. I also got to contribute a quote to another blogger about how important to advocate for yourself when doctors are dismissive or misdiagnose you (one time a doctor told me I didn’t have asthma… when I clearly do and have since birth!) I was also delighted to discover that another blogger read my latest My List of Little Joys posts and was inspired to write a post of her own on that theme.
I hope you all enjoy these links and have a wonderful Labor Day weekend!
